Monday, March 12, 2018

The Eyes Have Me (Personal Essay by Bob Racine)

During the stretch of my childhood and most of my adult life I always had excellent vision.  I never once needed corrective lenses.  I never had trouble reading signs, large or small.  I used to amaze my mother with my ability to figure out the wording on a bus marquee, even when it was a block or more away.  I knew before my mother did and before it rolled to a stop in front of us whether or not it was the one we needed to catch to take us where we were going.  I never even needed “rest” glasses for school or play.  I could see with what I suppose was 20/20 vision, though the extent of my visual acuity was never measured precisely.  And I could read for long periods without my eyes ever tiring. 
                                        
All that changed in the year 2003, the year I turned seventy, one year after I retired.  I noticed one day in the spring of that year that I did not have completely clear sight in my left eye.  I had what looked like some kind of grime or tar-like substance around the bottom edge of the eye window and bunched up on the far right side.  When washing the eye out and putting in drops did not eliminate it, I ignored it for a few days in the hopes that it would disappear.
                                        
It did not. 
                                        
I began to suspect that I had cataracts, something I had never encountered before and I did not worry, because I knew people who had had cataract surgery and that it was no big deal.  In fact, it is supposed to improve sight.  Of course I knew that I had to see my ophthalmologist to check it out and be sure, which I did.
                                        
What he told me was quite startling.  I did not have any grime or foreign substance in my eye; I had lost cells.  A part of my eye had been destroyed, and there was no way to restore what had been lost. Some plaque in the carotid artery below the eye had compacted, pushed upward and spilled into the eye knocking out the cells.  He was quite alarmed at what he found, so much so that he picked up his phone and called my primary care physician.  Then my primary doctor by way of my ophthalmologist ordered me (not suggested – ordered me) to get myself right over to the hospital emergency room.  It was the shortest visit I have ever had with any eye care doctor.  He said I was in danger of suffering a stroke; that plaque could have traveled all the way up to my brain and done permanent damage and still could.  I did not even go home; I called my wife Ruby and informed her of what was going on and she promised to meet me at the hospital, which she did.     
                                        
I went to my ophthalmologist thinking that I was going for eye treatment, but before I knew it, I was being whisked away into the lap of big medicine, with an assortment of doctors and examiners around me and soon was occupying an overnight hospital bed, where I would remain for the next four days. 
                                        
It was unreal!
                                        
I felt as if somebody had played a trick on me – me with my excellent vision.  How could this have happened? 
                                        
The physician in the ER checked me out and told me that I was not on the verge of a stroke, but after consultation it became clear that my visit was not going to be short.  The first treatment to which I had to submit was blood thinning.  In the private room where I was finally taken I was connected to a huge machine that sat on the floor – the blood thinner.  The few times before in my life that I had been checked into a hospital I had undergone pain and powerful  drugs and general disorientation, but what was so amazing about this visit was the complete absence of any discomfort – except for boredom.  Over the next few days I had to lie there listening to this contraption grinding and murmuring without being able to disengage myself from it and having to do all my toilet stuff into a bed pan.  For three whole days I was so confined.  They were making sure that I was not going to have a blood clot; I was also in danger of that.  The thinner the blood the smoother the flow, and the safer I would be. 
                                        
I do not recall at what point during my four days I was informed that I would need surgery on that carotid artery.  It had to be opened up and cleaned out.  And during my stay, even before being admitted to a bed, I was subjected to something called a Doppler Test.  A flat surfaced device, one that in my perspective resembles an electric shaver, had been rubbed over both sides of my neck for the space of approximately a half hour, while an attached machine made bizarre sounds that put me in mind of some prehistoric animal repeatedly opening and closing its big, cavernous mouth.  I was told that the device was taking more detailed pictures of my neck.  A noisy and gross way to do it!  At least the blood thinner did not scare up that degree of clamor.  I had no way of knowing then that that very Doppler gadget many years later would become a very complicating factor in my life.  More about that when I get to it!
                                        
For the first time in my earthly existence I was told that I was about to undergo a frankly dangerous and delicate operation.  That opening up of my carotid could conceivably cause the very stroke its cleaning was designed to prevent.  So inevitably came the hour when I had to sign the form absolving the hospital of any blame in the event that the surgery produced any undesirable results, stroke or whatever.  This was a new dilemma for me. I had had doctors treating me all my life and I was accustomed to them giving me assurances as to how long I would have to suffer from the flu or mumps or any number of other infections.  I was used to being given positive report.  This new type of warning seemed not far away from being told that I had only six months to live.  Danger!  Danger!   I had the option of cancelling the surgery, checking out and taking my chances.  But what is the point of having physicians, ones who have completed med school after years of study and become qualified in their specialty, if we are not going to be guided by their advice?  If they do not know what treatment is required for healing, who would?  So I scratched my little John Hancock at the bottom of the document, knowing that in so doing I was casting my fate to the wind.
                                        
What haunted me in the hours that followed was the question of what an “undesirable” result from the surgery would be.  What would it look like?  Would I be rendered a mute or a mental defective?  Would I become a vegetable, completely helpless and have to be fed and clothed and maybe carried?  Would I end up in a wheelchair?  I suppose I could have asked the question, but I preferred at that point not to know.  What my imagination could do with just a little input from the doctors might be worse than waiting until it was over and seeing if any of my nightmare fear has become a reality.   
                                        
So I used what time I had left in my room to do all I could to keep my mind off the issue.  Two of my three children came to visit me (the other one was in California) and I enjoyed their stay.  They did a good job of keeping me focused elsewhere.  And Ruby was a great help that way also.  I knew that she was deeply concerned; after all, if the worst scenario played out she would have quite a load to carry, but she kept her cool.  I also had visits from friends and KC people.  What would I have done without my fellow believers?
                                        
Came the morning of the operation and I knew I was as prepared as I would ever be.  One thing that boosted my spirit a bit that day was a comment by my surgeon that he was not worried about me pulling through it.  He based his remark on his study of me since my entering the hospital.  He thought I had the right attitude and the right spirit of trust in him and in God.  As is the case now with modern medicine the anesthesia took effect immediately and I mercifully lost any sense of where I was and enjoyed a painless and dreamless sleep.
                                        
When I came out of the anesthesia I found myself on a gurney being rolled down a corridor.  There was a group of medics walking alongside me.  I heard one of them say “He’s awake!”  At once the gurney ceased to move and suddenly all their eyes were upon me.  My surgeon, one of the group, asked me to make a fist with my right hand, which I did, and all at once the group let out a big cheer.  I realized from their reaction that a lot had been riding on whether or not I would be able to make that fist.  They were shouting praise and victory and I was congratulated on making it through.  The bothersome item was the presence of a large patch attached to the left side of my head covering the incision. 
                                        
I took all this in without feeling much like celebrating, though I was pleased with the result.  It was not until a while later that I shuddered under the realization that I had had a close call.  That cheer did not cheer me for long.  I knew that I had kept everyone in suspense.  It could have been a case of “the operation. . . a success but the patient died” or “came out a basket case”.  I was so glad that I had been out of consciousness when that was still a pending question.  One little fist to tell me that I was still among the living and healthy!  What I was not allowed to forget was the existence of the right side carotid artery.  It too had some plaque in it, but the doctors did not want to tempt fate and try to clean out both at one time.  They did not feel that the amount that was in the right one merited surgery just yet.  That surgery would not take place until 2011, eight years later and did so again without any adverse results.  I was told to keep submitting to the Doppler Tests on a regular basis, which I did faithfully – until quite recently. 
                                        
Here is the real rub: I walked away from both operations knowing that I had only one really good eye, my right one.  But since this handicap had not interfered with my mobility in any way, since I could see the space in front of me in its widest aspect and since I could read with proper corrective lenses, I no longer gave my visual limitation much thought.
                                        
But at last came September 2017, and the eyes once again entered the picture and my life and in a much more restrictive and frightening way.    
                                        
It was on the first day of that month that I faithfully took myself once more to the lab and submitted to a Doppler.  Up to this point I had never had any trouble going through that extended rubbing against the sides of my neck or listening to that ghastly “prehistoric” sound; it had never taken more than twenty or thirty minutes.  No pain or complication was involved in it, and I had no reason to suppose that this time would be any different. 
                                        
Little did I know!
                                        
I slowly became aware during the procedure that I was feeling quite hot; the room felt tight; I started to evidence sweat.  I was thinking that that Doppler was taking longer than any of the others had lasted, though I later learned that that was not so; it consumed only the usual twenty to thirty minutes.  When I was finally told that it was over, I was not sure I would be able to get up off the table.  I had to struggle to get myself into an upright sitting position; I required help from the lady who administered the treatment.  When I finally got to my feet, I was feeling not only hot but rather lightheaded.  I recall that I was asked if I was okay.  I guess I replied in the affirmative, but as I look back on the moment it impresses me that I was making an assumption.  Of course I’m all right, haven’t I always been at this point?  I prided myself on being able to knock off these Dopplers as a simple matter of course.  All I thought I was feeling was that heat and a simple desire to get somewhere where the air was cooler and take a deep breath. I blamed the hot flash on the room.  
                                        
I had parked my rollator (which I have come to need to provide mobility and balance to get around with a Lumbar Stenosis condition, another long and complicated scenario of development that I will not go into here) just outside the door of the room.  I grabbed it up and started to find my way out of the building.  Exactly how long it took me to arrive at the street outside I cannot say; I just know that I had trouble figuring out exactly where I was.  I had been in this building many times before for various purposes; I knew the building, but for a short spell I was not sure I knew it after all.  I took the elevator, but somehow I landed on the wrong floor.  Though I thought I had punched for the first floor, somehow I was back on the second floor and had to ask help from a stranger, who walked me back to the elevator and made sure I punched the right button to descend. 
                                        
The strangest thing about this indoor journey was the difficulty I had steering the rollator.  I kept drifting to the left side of each aisle; I even rubbed against a few walls en route.  When at last I reached the curbing at the front of the building, I was not sure of the best way to get off the sidewalk.  Just as I started to lift the rollator over the curbing’s edge, a lady pedestrian called my attention to the presence of a ramp just a few feet from where I was standing.  Just a few feet away, and I had not seen it!  Fortunately I remembered where I had parked my car and it was just a few yards away from that ramp.  Thankfully I did not have far to walk to it.
                                        
Then one of life’s most embarrassing moments!  I opened the trunk to deposit my rollator into it, something I had been doing on a regular basis for close to a year, but found I did not have the strength to lift it off the ground.  Again, my pride kicked in and I tried to summon the strength anyhow.  I strained every back and arm muscle to make it rise, but all I succeeded in doing was losing my balance and falling backward onto the pavement, right on my butt.  Again, a stranger came to the rescue.  I asked him as humbly as I knew to pick up the rollator and put it in, which he did.  Then he was kind enough to help me to my feet, something I knew I would not be able to do on my own.  I thanked him and got into the car and drove home, still feeling like I was in the middle of a hot flash and as if I might faint at the wheel. Perhaps with some divine intervention I made it home without calamity.  I will spare you the dizzy details.
                                        
To make a long story short, I learned three miserable days later upon a belated medical examination that I had had a stroke during the Doppler Test, two very small ones in fact.  I suppose the reason I had not realized what had happened to me until that clinic visit is the fact that I had not noticed any symptom such as I ordinarily associate with stroke.  No slurred speech!  No palsied behavior!  No numbness in my arms or legs!  No awkwardness in my walking other than what my Lumbar condition had already inflicted upon me in the preceding few years!  This is what I noticed.  Ruby, on the other hand, reports that I was very discombobulated that whole following Labor Day weekend.  I could not sleep.  I could not dress myself without assistance or tie a shoe or carry on an entirely coherent conversation.  And yes, I did slur speech and had trouble walking a straight line.   To this very moment I have no recollection of these things.  So she got me to the clinic on Labor Day Monday morning.  Once again under doctors’ orders I had to submit to extended confinement, this time in a rehab center for two weeks. 
                                        
Now here is where the eyes come back into the picture. When someone suffers a stroke of any magnitude in the state of Maryland, that person is required by law to report its occurrence to the Motor Vehicle Administration, whereupon one’s driver’s license is suspended.  This I did upon my primary care doctor’s advice.  After being discharged from the rehab, I was required to undergo what is called Home Care with some occupational therapists for what turned out to be three weeks.  These visits were quite helpful and reinvigorating.  During all these weeks naturally I looked forward to getting my driver’s license revalidated and for this to happen I was required to be tested in various areas.  What I thought would be the most crucial testing was for cognition.  I had some fear that my cognitive test would show that I had some mental deficiency resulting from the strokes and that these would become a barrier to getting back behind the steering wheel.  It turned out that I was cleared for this.  In fact, I am supposed to be unusually sharp mentally for my 80-plus years.  This the lady examiner told me!  So I was breathing excitedly as the rest of the testing was applied.  I was like a school kid getting vetted for the first time.  I thought I was at last home safe.
                                        
But finally I was given the eye test, and that was the one that sank me!  Yes, that visual impairment I suffered back in 2003 finally caught up with me.  She could not recommend me for the road test with only one proficient eye.  After fourteen years of driving safely with it I was denied readmission to the roadway.  I am now grounded for life, dependent upon Ruby and others for transportation.  I am back again confronting the subversive workings of that carotid artery.  I feel as if some demon villain somewhere in the back of my mind is having the last laugh on me.  After fourteen years I learned that during that whole period I had been driving illegally and did not know it.  After that first surgery on that first artery no one including my eye doctor had cautioned me about driving a car.  I was never tested until the aftermath of a stroke made it necessary. 
                                        
If only that were all to disturb me!  I have been increasingly aware over these months of just how weak and deficient my eyesight has become.  Of course I use reading glasses, but I also I cannot read anymore without the use of a magnifying glass.  I require large print on all the books I read, and newsprint has become a real challenge.  I have had to enlarge the font on my word processor far beyond what it was in the beginning, the very one I am using at this moment to write this essay.  I experience a great deal of eye fatigue.  Reading is still a joy, but it has never been such a challenge. 
                                        
Maybe upon learning this some of you are thinking that the answer to my reading stress would be audiobooks.  But what would interfere with my use of one of those is another handicap I have been nursing for over forty years – hearing impairment. There are not many voices on those audio transmissions that I can follow.   I have lived with hearing loss for so long that I sometimes forget that not everybody I do business with knows about it.  I use hearing aids, but their reliability is greatly limited.  I usually have difficulty talking over the telephone.  Without access to a person’s face and lips I miss important words.  Whenever I put through a call I have to have Ruby nearby to take over in case I get stuck with someone I cannot understand.  My hearing loss comes into play in the use of television also.  I am better off with hearing aids, but they do not cover all occasions.
                                        
The one fear I have lived with since 2003 and still do is that of the right eye suffering the same fate as the left one did.  How long can this one good eye go on doing double duty?  And the worst conceivable possibility is that of having to live in a world of nothing but shadows.  I depend upon my eyes for so many things.  I envision having to give up watching, and writing about, movies, something I have been doing for most of my adult life and from which I derive so much pleasure.  Becoming blind, at least legally!  I find myself trying to imagine what that kind of existence would be like. 
                                        
But I am not a chronic depressant.  My faith in God is stronger than ever; I belong to a solid and supportive spiritual community without which I know I could not begin to survive.  I am satisfied that I have used my life and my learning to the maximum to shape this world into the likeness of the Kingdom of Heaven and Eternal Love.  I am married to a wonderful woman and have brought forth kids and grandkids of whom I have every reason to be proud.  My life story has undergone drastic changes in the past, ones that led me to feel that I had to back up and start the creative process all over again, and I succeeded each and every time.  There is no reason to believe that such a beginning over cannot take place again, whatever it looks like.  I pray it will not come, but I will pour myself into it, when or if it does.  The peace of God in my heart will make that possible!


To read other entries in my blog, please consult its website:  enspiritus.blogspot.com.  To know about me, consult the autobiographical entry on the website for Dec. 5, 2016.

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